January...On the mend...?

So January's cough swab came back with a big fat nothing again. Hopefully that rotten pseudo has gone. After changing my reflux meds my sickness has eased right up, iv had a couple of slip ups but all in all I feel great :) however, m&d have just noticed that I have a black tongue. Sounds strange I know but to see it, it's like a black coating towards the back of my Tongue. We have our first shared care appointment on 21st jan at our local hospital so will get the doc to have a look at it then.

Swimming is going great. I'm loving it, frankie and I are getting really good at the underwater stuff. Mummy and lana are getting better too but not as good as us. The end of January marks the end of our intermediate 1 class :) to end the term we swam underwater through a hoop. See told you we was getting good :) next week (beginning of feb) is the start of intermediate 2... But we will miss the first lesson as we are going on HOLIDAY!!! :) we are off for a week to centre parks with nanny and grandad white, uncle Paul and his friend mike. Fun fun fun...

So the doc looked at my Tongue and he thinks it's a fungal infection. Apparently the nebuliser can make it more habbitable for fungi. They took a swab and sent it off to the lab for testing. After a looong week the results come back positive for pseudomonas :( that horrid bacteria that we thought we got rid of. I have one more cough swab in febuary to say if it had gone or not. Obviously not. They decide to change my meds again and also once we get back from holiday they are going to change my nebuliser to a different med too. Hopefully the combination will get rid of it once and for all. I shall keep you posted on that.

Mummy Is now freaking out packing everything except the kitchen sink haha. Will update soon after my first ever holiday :)

Cheerio... E x

New year....on to better things....

Sorry its been a while. So after the bad news of the pseudomonas in my lungs November, we went for our last clinic appointment of the year and my cough swab came back clear :) 2 more to go before we get the all clear. On the way to the hospital I was sick in the car, this was the start of a nasty tummy bug that lasted all over Christmas so all in all not a very good first Christmas for us. I started to get over it then new year it was back. Soon as our cf team were back after the new year mummy called them. They decided to change my reflux medicine to see it that helped as they didn't think it was a bug. Touch wood it seems to be working, more meds but it makes me feel better so its worth it.

So my first christmas... I started at home with mummy and daddy and watched them open presents. I did try and open a couple but was feeling too poorly. Then we went off to see my great nanny. I had lovely cuddles with her before going off to my other great nanny and grandads for Christmas dinner. We spent the day there with great nanny and grandad, great uncle Danny, nanny and grandad White and uncle Paul. Was a lovely dad although daddy had to pop home to get me even more clothes a I was quite sick through the day and used all the spare ones mummy took for me.

Boxing day we went to grandad and nanna lotts with auntie Sarah uncle Kevin, auntie Kelly and uncle John. We played games had another christmassy type dinner. After talking to a doctor last night mummy started giving me normal food again And my sickness seemed to ease up. All today I have been fine :) that's something good. I had afew ups and downs between now and new year but hopefully im on the mend.

New years eve was great. We had a party round nanna lotts. Lots of friends and family. I had lots of cuddles with everyone. At the strike of midnight (I was tucked up in bed) they all went outside and lit Chinese lanterns and set them off. I woke up briefly while they were doing this and m&d came and said happy new year to me. We all made a wish and then I went back to sleepy....

Heres hoping all ours and your wishes come true...

Wishing you all a happy healthy new year :)

Ethan x