About Me

My photo
Well I entered the world on 25th June 2010, the day after mummys birthday. That picture up there was one of the first daddy took of me. We were all fine and was home the next day. As I am now at 9weeks, I love being in my swing, on my play gym or in the bath kicking my legs around (ready for daddy to take me footie) I'm quite the dribbler!! I do love cuddles though :) I do have my screaming fits, excersising the lungs, I get passed from mummy to daddy then back to mummy till eventually I fall asleep, bouncing me does wonders. So I'm pretty much the same as every other 9week old on the block, only difference is I have Cystic Fibrosis. I will get mummy to explain it as best she can for you and will try to keep you as up to date with everything as we can. So here is my story.....

Tuesday, 1 May 2012

Clear for a year...

Well I have been waiting a while to write this as iv had a bad time these last few weeks but as I have had my results back I can now announce that I have been pseudomonas free for a whole year :) I have had all clear swabs since last year. Every one is so pleased considering i have had a really bad wet cough for the last week, turns out, its just a cough.

So, since I last updated on here I have had a little blip with my weight and lost a little. The dietitians and my consultant were having talks about calorie supplement shakes if it didn't improve but at clinic in March I proved them all wrong. I put on 1.1k and grew a couple of centimetres too. Fantastic!!

Had a great second Christmas. I was dressed as an elf this year :) great nanny loved it. I also found out Christmas day that i am going to be a cousin. My auntie Kelly is having a baby, a girl to be precise. Obviously I am pleased about this and excited but no way near as much as mummy is.

Well as the so called summer is approaching and we are hopefully out of all the bad weather, fingers crossed i continue in good health as well as all my other cf friends :)

Believe it or not but I will be turning 2 next month so will be back to tell you how it all goes...

E x

This is my Nana Lott, Great Nanny and Auntie Kelly at Christmas

Me and Grandad (ga-ga as I like to call him) at Christmas
me, dresses as an elf :)

My Halloween Dracula outfit 

Looking dapper for aunty Kelly's 30'th Birthday partaay :)

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