About Me

My photo
Well I entered the world on 25th June 2010, the day after mummys birthday. That picture up there was one of the first daddy took of me. We were all fine and was home the next day. As I am now at 9weeks, I love being in my swing, on my play gym or in the bath kicking my legs around (ready for daddy to take me footie) I'm quite the dribbler!! I do love cuddles though :) I do have my screaming fits, excersising the lungs, I get passed from mummy to daddy then back to mummy till eventually I fall asleep, bouncing me does wonders. So I'm pretty much the same as every other 9week old on the block, only difference is I have Cystic Fibrosis. I will get mummy to explain it as best she can for you and will try to keep you as up to date with everything as we can. So here is my story.....

Tuesday, 28 January 2014

Same time next year?

So centre parcs was THE best ever... Had a fantastic time. We played golf, rode our bikes, played badminton, tennis, went in the arcades, loads of swimming. It was fantastic. However, I'm still not doing very good. My cough is worse and needs to get sorted. Who knows what damage it's causing in there. So in we go for another 2 weeks, just like this time last year. But I'm not going to book my bed for next year just yet because I'll be stronger next year. Thursday 30th January I have an appointment at The Royal Brompton to hopefully get a long line in then we will be going back to whipps for the 2 weeks. 

It sucks! 

CF sucks! 

But I need to and WILL get better, then it will be me kicking cf's butt!!

Ethan x

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