About Me

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Well I entered the world on 25th June 2010, the day after mummys birthday. That picture up there was one of the first daddy took of me. We were all fine and was home the next day. As I am now at 9weeks, I love being in my swing, on my play gym or in the bath kicking my legs around (ready for daddy to take me footie) I'm quite the dribbler!! I do love cuddles though :) I do have my screaming fits, excersising the lungs, I get passed from mummy to daddy then back to mummy till eventually I fall asleep, bouncing me does wonders. So I'm pretty much the same as every other 9week old on the block, only difference is I have Cystic Fibrosis. I will get mummy to explain it as best she can for you and will try to keep you as up to date with everything as we can. So here is my story.....

Monday, 10 March 2014

Bronchoscopy finally done... 10/3/14

This morning I had breakfast with daddy, he went off to work and auntie Sarah came to pick me and mummy up. We drove back to Sarah's then got a bus, my first ever bus, went down to the train station  and headed off to the hospital. Two trains and a little walk, well piggy back for me, and we was there. 10am we got there. The morning was pretty darn boring, they done my weight (16.1kg) and height (99.8cm) and that was basically it. A few doctors came in and spoke to mummy while me and Sarah was playing games and doing puzzles then finally 3 o'clock I was wheeled down on my bed to the theatre. That's where Sarah said goodbye but mumsie came in. I sat on mums lap and she put a mask like my nebuliser over my face, I took a few deep breaths but it tasted really nasty so I tried to get it off but..... I was asleep!

An hour later I was in recovery with mumsie waking me up, I was soo tired but chatty, talking about seeing my friends Nik and Ryan tomorrow and going to feed the ducks, I even remembered Ryan has a baby brother called Alfie. The nurses seemed pleased that I was coming round well and didn't seemed confused or anything so the wheeled me back up to my room and back to auntie Sarah. 

My consultant was already there and waiting for us, mumsie spoke with him while I went back to Sarah. Doc said it wasn't bad but wasn't brilliant either. He did find some gunk in there which he managed to suction most of it out but my airways looked good and wasn't inflamed. So now we just have to wait and see what, if anything grows in the lab. In the mean time they have started me on 2weeks of ciprofloxacin, typical when it's nice and sunny and this antibiotic makes your skin more sensitive to the sun. Better get the sun cream out. On the upside they have given me it in tablet form not liquid :)

The next 2 hours wasn't too good, I was very upset at everything and screamed and cried for 2 full hours. I wouldn't let the nurses do my obs at all and the kept telling mummy that if I carry on like this I won't be allowed home, my blood pressure was really high. Luckily the nurse listened to mummy and backed off for a bit to let me calm down. Eventually I did. Good job as our chauffeur was here to escort us home, grandad trevie :) 

I had missed dinner by now but mumsie had some bits for me to eat, she then got me some jam on toast which I couldn't have eaten any quicker. So all that was left to do was a full set of obs and take my cannula out then we can go.

8pm and my cannula is out, my clothes are back on and I'm in the car. I let grandad get ooooh at least 10 minutes down the road before I made him pull over for a wee.... Well I had been really thirsty. We had a lovely drive home seeing London lit up at night and I stayed awake the whole way. 

Home before 9 to daddy and Levi, my cat, bite to eat and in bed by 10. 

What a long day...

                       Messing around pretending to be Rambo

                  In my stunning dress ready to rumble

1 comment:

  1. Brave little soldier. That superman T shirt is well desrved! Can't wait to catch up and give you all big hugs once I too an lurgy free! Love you all and. Well done Superboy I know Robin would agree there are adult patients no where near as brave as you! Big kisses from Meadow xxx