About Me

My photo
Well I entered the world on 25th June 2010, the day after mummys birthday. That picture up there was one of the first daddy took of me. We were all fine and was home the next day. As I am now at 9weeks, I love being in my swing, on my play gym or in the bath kicking my legs around (ready for daddy to take me footie) I'm quite the dribbler!! I do love cuddles though :) I do have my screaming fits, excersising the lungs, I get passed from mummy to daddy then back to mummy till eventually I fall asleep, bouncing me does wonders. So I'm pretty much the same as every other 9week old on the block, only difference is I have Cystic Fibrosis. I will get mummy to explain it as best she can for you and will try to keep you as up to date with everything as we can. So here is my story.....

Tuesday 31 August 2010

Thursday 15th July....First time at Brompton...

Off for the sweat test....

cuddles with daddy before we set off
I'm back....so me, mummy and daddy go for a long drive to South London. I was a good boy and slept the whole way. I woke up when we arrived and I must say, it's very posh. Dosen't look like a hospital at all, until you get to the rooms or wards of course. We was met by a lovely lady called Jackie. Like Pat she is one of the specialist nurses there, along with Katie and Vikki...we meet them later. Jackie attached a little device to my arm for a few minutes to make it hot and sweaty, this was quite uncomfortable and i did cry....just a little though. Then she took that off and strapped something else round it to draw in the sweat. She then done the same to the other arm. I was a bit fed up by now so I thought I would let them know with a screaming fit. The little thing that takes in the sweat stayed on for about half an hour, this was fine, didnt really feel it. This was lunch time for me anyway so I was happy. Jackie then took it all to the lab to investigate and after about half an hour she was back with the results. M & D was prepared for the answer, of course it came back posative...I have got cystic fibrosis :( They all had a little chat about what happens next, I was slowly nodding off, still feeding :) We are to come back next week for 2 days so m & d can have their 'training' and start me on the meds....

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