About Me

My photo
Well I entered the world on 25th June 2010, the day after mummys birthday. That picture up there was one of the first daddy took of me. We were all fine and was home the next day. As I am now at 9weeks, I love being in my swing, on my play gym or in the bath kicking my legs around (ready for daddy to take me footie) I'm quite the dribbler!! I do love cuddles though :) I do have my screaming fits, excersising the lungs, I get passed from mummy to daddy then back to mummy till eventually I fall asleep, bouncing me does wonders. So I'm pretty much the same as every other 9week old on the block, only difference is I have Cystic Fibrosis. I will get mummy to explain it as best she can for you and will try to keep you as up to date with everything as we can. So here is my story.....

Sunday, 21 November 2010

Monday 15th November.......off to clinic....

So today mummy and I went off to the Brompton for our clinic appointment. I now weigh 15lb 8oz and i am 64.37cms tall. We saw the dietician who is very pleased with my weight gain so all this yummy food I'm having must be doing me good. We saw professor Bush today, he is very nice and wears funny coloured beads round his neck. I tried my hardest to grab them and put them in my mouth but mummy kept stopping me. Anyway he checked me over head to toe and believe it or not said I am In eceptionally good health, chest was dry an clear, oxygen saturations 100% for the first time ever tummy felt good and overall very pleased with me....GO ME!! unfortunately for me however as I'm becoming a big strong boy my yucky medicine has to be increased with my weight :( not the best news for me but hey, I'll swallow what I want and spit the rest out when m&d not looking hahaha, naughty I know but believe me, if you had to have it you would spit it out too!!

That's all for today, Ethan x

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