Back here again, I'm starting to think this is my second home.Were back at the brompton hospital. We get shown up to a ward with a couple other children on there, none my age though :( and that's that. i doze off again, we all know i like a little nap :)
Wow I'm starving now. we have been here hours and iv not had any bot-bot at all. Ill soon change that, SCREAM!!!!!!! Ok its not working they are just bouncing me around, walking up and down and passing me back and forth. Whats going on? I'm not liking this at all! Ok this is getting a bit of a joke now, this lady keeps coming over and strapping something round my arm (blood pressure) and checking my temperature, well hello its going to by high, I'm getting myself all in a tis here.....I'm starving!! A little while later daddy took off my clothes and puts me in what can only be described as a dress...yes a dress!! We go for a little walk downstairs and into a room full of people. Mummy laid me on a bed a looked a little teary :( then this man stuck a mask over my face, i smell a funny smell and......
I wake up in mummies arms my throat is a little sore, i can feel something attached to my face and my hands have been bandaged up, they look like boxing gloves. As i start to come round i can see daddy getting my Creon ready for my bottle, at last. I finish my bot-bot and drift off to sleep.
So this is what apparently happened....
...the funny smell was a gas that put me into a deep sleep. While i was asleep the doctor put a camera down my throat into my lungs to check my airways etc and to see if any nasty bugs were hibernating in there. Quite common in cf apparently, we tend to grow lots of different bacteria which can be rather harmful to us if not treated. After they done this they put a probe in that sat at the top of my stomach. This is connected to a little device that will record if i am refluxing at all. This has to stay in for around 20 hours. This is what i can feel taped to my face. Mummy now has to record the time she starts and finishes feeding me and what time I'm laid down and picked up until they take this thing out.
Daddy had to leave us at night as there is only enough room for one parent to stay with me. He went to stay in a room in a different part of the hospital. I gave mummy a bit of a run for her money tonight, I'm not in my own surroundings, it smells funny and is so noisy. I eventually give in and fall asleep for a few hours.
I wake up in the morning feeling a little groggy but ok and I'm pleased to say its still back to normal with my milk, no more starving me. Now we are just doing a lot of hanging around waiting for the all clear to remove the probe then its home time. I really wish they would un wrap my hands, I'm getting rather agitated not being able to chew on my fingers. After a bit of wriggling i manage to free a finger :) hahaha you thought you could keep them wrapped up....never!! The nurse gives in and takes of the bandage on one hand, yippee!
Finally the nurse comes over and takes the probe out and takes all the different bandages off me. Daddy gets me dressed and its home wood bound :)
Ethan x
P.S Forgot to say i now weigh 12lb 14oz
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| see....a dress!! |
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| when i started coming round |
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| with my boxing gloves |
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| finally sleeping |
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| hahaha i have a free hand |
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| on daddy playing with the wire just before we went down |
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| heading for home, with a slightly red cheek |
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