I had quite a bad night last night. Had a bit of a temperature and a little cough. Daddy gave me some nurofen throughout the night and helped me to sleep a little better. When mummy got me in the morning I felt a slightly worse and sounded a little 'horse' as mummy puts it. We had breakfast as usual but I didn't really want my bottle. My teeth were hurting, I had quite a nasty cough and because of that I had a really sore throat. My temperature started to rise so mummy gave the hospital a call. She spoke to the registrar who said to change my antibiotics over for the cough and to go to my doctors just to get checked out. A few minutes later the phone rang, its Jackie, one of my specialists from the hospital. Unfortunately she was the barer of bad news......
When we go to clinic I have to do a cough swab. Basically they tickle my tonsils with a big cotton bud to make me cough and if I have any nasties in my lungs it will show up in here when it's sent to the lab. Mine has come back positive, for pseudomonas. At the moment I know it's bad just not sure how bad, the Internet kinda confuses me a bit so try not to read too much on there. I need to have a different medicine called Ciprofloxacin twice a day for 3 weeks. I also need to go into hospital next week to get something called a nebuliser. I think this is like a gas mask where i breath in medicine. I will need to use this for at least 3months now, maybe more. Not sure if I'm going to like this. So that explains why I have been feeling a little off lately. I guess this means that the cf has really kicked in now :( 4 months of good health is not bad.
It's Sunday now and I'm feeling worse than ever. My voice is all croaky and throat is very sore. My cough seems to be getting worse. But iv only had 2 lots of the new medicine so far. I guess I have to give it time to start working. I wake up several times in the night coughing and m&d give me some water to try and help, it does for a while but not for long. I can tell that mummy and daddy are worrying but I'm a fighter and I'm going to see this nasty bug off in no time, you see.
We have not had a very good month in the white household, but after Mondays excellent clinic report we thought things were about to change. Just didn't expect them to change for the worse.....
Will keep you posted when i can,
Ethan x
About Me
- Ethan (and mummy and daddy)
- Well I entered the world on 25th June 2010, the day after mummys birthday. That picture up there was one of the first daddy took of me. We were all fine and was home the next day. As I am now at 9weeks, I love being in my swing, on my play gym or in the bath kicking my legs around (ready for daddy to take me footie) I'm quite the dribbler!! I do love cuddles though :) I do have my screaming fits, excersising the lungs, I get passed from mummy to daddy then back to mummy till eventually I fall asleep, bouncing me does wonders. So I'm pretty much the same as every other 9week old on the block, only difference is I have Cystic Fibrosis. I will get mummy to explain it as best she can for you and will try to keep you as up to date with everything as we can. So here is my story.....
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