This afternoon me and mummy are off to the Brompton for my first clinic appointment. Grandad Trev is coming with us because mummy is not completely sure how to get there. She will learn one day. So when we get there we are all taken into our own little room. People with CF are not supposed to mix to avoid cross contamination so that's why we all have separate rooms. First of all a lady calls us to go and do my weight etc. Argh, here comes the cold naked bit again.....well in 1week 2days i have put on a huge 1lb 5oz, I'm now 9lb 6oz. I am getting taller too, well longer they say. Anyway back to our little room and we see all the people we saw a couple weeks ago at the induction. They were just checking in to make sure m&d were doing my physio correct and getting on ok with the medicines etc and just altogether to see if we are all getting on ok. They have to take a cough swab from me too, not very nice. The lady sticks like an extra long cotton bud to the back of my throat to tickle my tonsils to make me cough. They then send that off to be analysed to check to see if i have any nasty bugs or bacteria taking up home in my lungs, Luckily however i have not had any 'squatters' so far. Hopefully with the physio and meds we should be able to keep the 'squatters' out. Today mummy signed me up for a medical study. This is a few extra little tests to try and help the doctors learn a bit more. The first one i will need to have is called a lung function test, we will get the appointment through soon. Joy more prodding and poking but like mummy said, its all extra care for me to check I'm still doing well and if it helps other little babies like me in the future then hey, I'm gain!
All done here, the docs say I'm doing fine and i feel it too.
Ethan x
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